A journey to sustainable recovery from ME/CFS
Articles

I write about my ME/CFS, aiming to provide clear, concise and practical advice based on real experience.

My aim is to build a guide to recovery, for myself and for others in a similar position. The articles focus on simple steps forward from where we find ourselves, without avoiding the challenges of chronic illness. I hope they can be helpful to you too.

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The gentle softness of winter
Winter can feel challenging in many ways... Continue reading
Published December 13, 2024
The Power of Acknowledgement
18 months in to having ME/CFS, I was finally referred to an NHS fatigue practitioner... Continue reading
Published November 28, 2024
Sharing your experience is a gift
I heard someone talk recently about how challenging things were for them at the moment... Continue reading
Published November 11, 2024
Getting back on track
Getting off track with our recovery is guaranteed. Crashes and Post Exertion Malaise can flatten us, life events sidetrack us, our mood can affect our motivation and we can get out of the habits that help support recovery... Continue reading
Published October 7, 2024
Resources for ME/CFS
An ongoing list of useful resources for people with ME/CFS and their carers.... Continue reading
Published September 26, 2024
Aims for Mindful Fatigue
I thought it was time to define my aims for this blog, to be clear about what this space is and what it isn’t, so you can decide if it’s the right place for you (I hope it is!).... Continue reading
Published September 3, 2024
Getting back out into the world
Time passes differently when you have limited energy. What might take a day before now takes a week or more, and gradually we get isolated from the world, because it’s not possible or practical to be more engaged.... Continue reading
Published August 8, 2024
How to do the STOP process
The STOP process is a simple, practical method to work with unhelpful thought patterns that perpetuate our stress... Continue reading
Published March 28, 2024
Finding your baseline
The aim of pacing is to stay within our energy envelope to give our body a chance to heal.... Continue reading
Published February 23, 2024
Establishing a points system for pacing
Pacing is essential to manage our symptoms and build reserves, but it’s not always clear how to do it. Here is the method I use, which you can adapt to your own needs.... Continue reading
Published February 8, 2024
Post Exertion Malaise and the importance of pacing
One of the most essential tools for recovery is pacing... Continue reading
Published January 1, 2024
The winter flowering cactus
By the window where I often sit is a cactus. It sprawls beside me, inert for most of the year... Continue reading
Published November 16, 2023
Relaxing into the journey of recovery
If you knew you were going to recover, how would that affect you?... Continue reading
Published November 6, 2023
Recovery vs living with symptoms
The messages we get from most sources, including the NHS and charities, focus on living with our symptoms, instead of recovery... Continue reading
Published October 17, 2023
How to cry
When I first started meditating, within a minute I would feel a strong urge to cry. It was like a trapped wave of emotion rushing to the surface as soon as I relaxed my guard... Continue reading
Published July 27, 2023
Enjoy anticipation
The choice of how we act is one of the things taken away from us by fatigue, and one of the hardest things to deal with... Continue reading
Published July 14, 2023
My 2 year progress chart
Having covered the process I use to track my energy levels, I’d like to share my actual chart... Continue reading
Published June 23, 2023
How I track my energy levels
I’ve been tracking my daily energy levels for two years now, since first getting ME/CFS, so this seems a good moment to review and share my progress... Continue reading
Published June 2, 2023
You're doing really well
When did you last tell yourself that you’re doing really well? Or comfort and praise yourself and acknowledge the progress you’ve made?... Continue reading
Published May 19, 2023
Remove sources of stress to start recovery
Imagine that your friend calls you and complains that every morning they find it impossible to get dry after their shower. No matter how much they use their towel or hairdryer, they just stay wet... Continue reading
Published April 24, 2023
A rest state is just a non-stress state
After living with ME/CFS for a while, and having lived with the contributing patterns of stress for much longer, it’s natural to become normalised to a high resting stress level... Continue reading
Published March 2, 2023
Relax your body in the moment
I’ve been practicing mindful breathing for over a year now, and it’s gradually had a powerful effect on lowering my overall stress levels.... Continue reading
Published February 17, 2023
Monitor the trend
Before CFS/ME, we all had days when we were just tired, for whatever reason. Tiredness is how our body indicates to us that we need to rest, to maintain our overall balance of health.... Continue reading
Published November 8, 2022
Real recovery is uneven
We’re used to lining up every day on the metaphorical racetrack and sprinting off to achieve our to-do list; work, kids, shopping, exercise, trips, ’omelette Tuesdays’... Continue reading
Published September 13, 2022
Stop avoiding your emotions
There are many reasons we avoid feeling our emotions and unintentionally build up our emotional load... Continue reading
Published Aug 15, 2022
Process your emotions to allow your body to rest
Emotions are an essential part of how we respond to the events in our lives. When something happens, our body signals its reaction to us through emotion... Continue reading
Published May 6, 2022
Trust your body to feel safe in your mind
When I’d get anxious or panicked, I’d get angry and frustrated at myself. There was no logical reason to be anxious about these situations, I told myself, so my symptoms didn’t make sense... Continue reading
Published April 28, 2022
Moderate stress keeps your body and brain healthy
If you exercise in a regular balanced way, your body will grow stronger. Your muscles, reactions and overall physical condition will improve... Continue reading
Published April 23, 2022
Your psychological patterns perpetuate your stress loads
Our psychological patterns influence what stress we take in to our lives, and how we view that stress. They are one of the biggest perpetuators of our stress load, often trapping us in a cycle that we aren’t aware of... Continue reading
Published April 13, 2022
Identify your stress loads
Chronic fatigue can be caused and perpetuated by carrying multiple stress loads over time. This combination eventually overloads our system and we get stuck in a state of chronic stress... Continue reading
Published April 12, 2022
Chronic fatigue is caused by chronic stress
Our bodies naturally heal. When you get a cut, you don’t instruct your blood to clot and your skin to grow; it does it for... Continue reading
Published April 5, 2022
Identify as a healthy person
Your identity is the foundation of your mindset, which in turn drives your actions. It makes some actions easy and automatic, and some actions... Continue reading
Published March 31, 2022